Podcast

Dennis Hurley: Actor, Advocate, and Albino – His life with albinism and info about the upcoming N.O.A.H. conference

Dennis Hurley is an actor, advocate, and albino. He has been living with albinism since birth and has spoken about his experiences in the media. Dennis will be participating at the upcoming N.O.A.H. conference July in Orlando, Florida. In this Situation Positive podcast interview, Dennis talks about about his life with albinism and how it’s …

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Dennis Hurley as a grocery store clerk

It’s Not In My Head

Why it took 12 years for Savannah to get a diagnosis Savannah Hunt knew at a young age that there was something wrong with her health. The problem was that the doctors could not pinpoint an accurate diagnosis. For 12 years, she was in and out of doctors’ offices, labs, imaging studies, and hospitals without …

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Savannah in the hospital

Brookanne’s Journey with Spinal Muscular Atrophy (SMA)

Brookanne Clark, who’s 40, is one of three siblings born with spinal muscular atrophy (SMA). She, unfortunately, lost one of her brothers but remains close to the other brother. Both live in Dallas, Texas. Brookanne has a great outlook and is a natural caregiver, taking care of family members, friends’ children, and helping out a friend who …

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Brookanne's Journey with Spinal Muscular Atrophy (SMA)

Sarah’s Journey with Chiari Malformation

At the tender age of fourteen, Sarah Kash learned that she needed brain surgery for Chiari malformation, a condition where the brain tissue extends into the spinal canal. In this interview, Sarah explains what it is like to live with this chronic illness. She discusses the diagnosis, her brain surgery experience, and how she is …

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Sarah's Chiari Malformation Journey interview on Situation Positive

How Chandler Turned Her Situation Positive

Chandler Crews has a passion for advocacy and social media. Born with the most common form of dwarfism, achondroplasia, she has been publicly sharing her journey for over a decade, gaining her a major online presence. In 2010, she made the decision to undergo a series of limb lengthening surgeries. In a span of just four years, Chandler went …

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Chandler Crews on Situation Positive

How Jonathan Hill Turned His Situation Positive

Over the last year, creative play and games like Dungeons & Dragons (D&D) have made a resurgence, helping players escape a real life monster – the COVID-19 pandemic. Dungeon master Jonathan Hill has been using the iconic fantasy role-playing game his entire life as an escape from the mind-numbing challenges of his chronic health condition, severe hemophilia A. …

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Author Jonathan Hill on Situation Positive

How LaMondre Pough Turned His Situation Positive

LaMondre Pough, 47, was born with spinal muscular atrophy (SMA), and like many with SMA, he is dependent on the help of outside caregivers to come into his home to help him with basic life functioning. It’s a catch-22 for someone with SMA to have people in your home right now because they are at much …

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LaMondre Pough speaking at the statehouse

How Angela Wrigglesworth Turned Her Situation Positive

Watch the Episode Angela Wrigglesworth is a 21-year veteran elementary school teacher in Houston, Texas who has Type 2 spinal muscular atrophy (SMA). In this Situation Positive episode, Angela shares what it is like to live and work with SMA, how working remotely with COVID has affected her ability to teach, treatments available for SMA, how …

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Angela Wrigglesworth pictured with some of her students is featured on this episode of Situation Positive.
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